Register for the MDA Virtual Summits


MDA is excited to be offering three new virtual Summits for our professional community in the Fall of 2021 as an extension of the 2021 MDA Clinical & Scientific Conference.  Based upon feedback from attendees, these programs will focus on specialty topics to provide important content to our research and clinical audiences.  This year’s summits will focus on the following:

•           Mental and Cognitive Health in NMD

•           Best Practices for Coordination and Transition of Care

•           Advances in NMD Gene Therapy Research & Treatment

All attendees of the 2021 MDA Clinical & Scientific Conference are invited to participate in these Summits and is included as a part of your conference registration, there will be no additional costs to attend.  Attendees will be able to participate virtually from the comfort of their office or home in presentations from experts, panel discussions and workshops focusing on these specialty topics in neuromuscular diseases.

For anyone who would like to attend, but did not previously register for the 2021 Conference, there are registration options available that will allow single event participation or full access to the one-demand 2021 Conference sessions as well as the series of 3 Summits. Please click here to register today!

Stay tuned for dates and additional information about the summits in the coming weeks.


9:00 AM – 10:00 AM

Exhibit Hall Open

10:00 A.M-10:05 AM


10:05 AM – 11:00 AM

Transition Clinics and Programs: One Team’s Experience

11:05 AM – 12:35 PM

Medical Decision Making – Selecting the Right Transition Plan & Care Team

12:40 – 1:55 PM


2:00 PM - 2:45 PM

Ethical Dilemmas in Transitions in Care

2:50 PM – 3:35 PM

Palliative Care for Patients with Neuromuscular Disease

3:40 PM – 4:25 PM

Supporting the Transition Process for Caregivers

4:30 PM


4:30 – 5:30 PM

Exhibit Hall Open

9:00 AM – 10:00 AM

Exhibit Hall Open

10:00 AM


10:05 AM – 11:00 AM

Mental Health Matters

11:05 AM – 12:20 PM

The Roles of the Specialist

12:25 PM – 01:35 PM


1:40 PM – 2:25 PM

When NMD Effects the Brain

2:30 PM – 3:15 PM

Dual Diagnosis within NMD

3:20 PM – 4:05 PM

Understanding and Managing Challenging/Difficult Behaviors in Children with DBMD

4:10 PM - 4:40 PM

Family/Caregiver Mental Health

4:40 PM


4:45 PM – 5:45 PM

Exhibit Hall Open


Strength of Life Partner

Circle of Strength


Friend of MDA